ALS National Advocacy Day

In May, 2016, Maeve, along with her family, traveled to Washington D.C. for the ALS National Advocacy Day. During this 3 day trip Maeve sat in on meetings to prepare for the trip to Capitol Hill, participated in conferences to learn of advancements being made in research, and met several people living with ALS. She was inspired by them all. When the day came to fight for the rights of people living with ALS, Maeve was poised and mature beyond her years. She spoke to Senator Bob Casey, U.S representative Mike Doyle, and countless others. She shared her story of ALS and how the disease had impacted her family and especially her grandmother. Traveling to Washington D.C was a life changing opportunity for Maeve and one she hopes to experience again.