ALS Kids Launch Party

On May 19, 2016 ALS Kids officially launched their business. Through the program Be the Boss sponsored by their school, St. Edmund’s Academy, Maeve and Sydney’s idea for a nonprofit was chosen after their pitch to a panel of judges. Eleven ideas were pitched and two were chosen that year to participate in the program. After 4 months of working with Denise DeSimone, CEO of C-Leveled, the girls were ready to launch their business to the public. The room was full of family, friends, and prominent business owners from around the city as two young girls spoke eloquently and passionately about their new endeavor. The girls presented the first of many checks to the local ALS Association as Maeve’s

ALS National Advocacy Day

In May, 2016, Maeve, along with her family, traveled to Washington D.C. for the ALS National Advocacy Day. During this 3 day trip Maeve sat in on meetings to prepare for the trip to Capitol Hill, participated in conferences to learn of advancements being made in research, and met several people living with ALS. She was inspired by them all. When the day came to fight for the rights of people living with ALS, Maeve was poised and mature beyond her years. She spoke to Senator Bob Casey, U.S representative Mike Doyle, and countless others. She shared her story of ALS and how the disease had impacted her family and especially her grandmother. Traveling to Washington D.C was a life changing

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